Monaco Stroke Association

Did you know ... about 1 out of 4 people will have a stroke in their lifetime ...

... make a difference & support us!

Monaco AVC (Accident Vasculaire Cérébrale), the Monaco Stroke Association, started with the experience of one Monaco Resident - Steven Saltzman. After having a stroke himself in 2019, he wanted to promote information, prevention, treatment, and support for patients and families in Monaco.

With his background in connecting people and making things happen he and his partner have made Monaco AVC their committment. However, more members are needed as well as professionals from diverse backgrounds, with knowledge in prevention, treatment, and rehabilitation. In addition, volunteers and donors are needed to help support the association to continue the good work.

"Whatever the Monaco AVC Association may mean to me, to Monaco it will be known by the results it achieves, and by statements from patients we may have informed, supported, or helped."
Steven Saltzman
ABOUT MONACO AVC

What type of strokes exist?

  • Ischaemic Strokes are caused by a blockage cutting off the blood supply to the brain. (The most common).
  • Haemorrhagic Strokes are caused by a bleeding in or around the brain.
  • Transient Ischaemic Attacks or TIA are known as a mini-strokes. A TIA is the same as a stroke, except that the symptoms only last for a short amount of time. This is because the blockage that stops the blood getting to your brain is temporary. It is uttermost important to recognize those and get treatment, as there is a high risk of having a regular stroke.
Read more:
https://www.stroke.org.uk/what-is-stroke/types-of-stroke
Les Types d'AVC et les effects differentes (FRENCH)
https://www.coeuretavc.ca/avc/questce-quun-avc/les-types-d-avc

What is the FAST test, or how do you recognize a stroke?

Stroke is a medical emergency. Call 17 if you are on a Monaco landline, or 112 from your mobile phone.

The FAST test can help you recognise the signs.
  • Face drooping: Can the person smile? Did the eye or mouth drooped or look different?
  • Arm weakness: Can the person raise both arms?
  • Speech problems: Can the person speak clearly and understand what you say?
  • Time to call 112 if you see any of these signs.

There are more signs to doubt about having a stroke:
  • A sudden, severe headache, often with real pain
  • Sudden weakness or numbness of the body, including legs, hands or feet
  • Difficulty speaking in clear sentences or finding words "no words come out"
  • Blurred vision or loss of sight in one or both eyes
  • Sudden memory loss or confusion
  • Dizziness or a sudden fall

What causes stroke?

As we age, our arteries become harder and narrower and more likely to become blocked. However, certain medical conditions and lifestyle factors can speed up this process and increase your risk of having a stroke.

What are the common effects of a stroke?

The brain is divided into 3 main areas, depending on where the Stroke is, it may have different effects as also each patient is different. Main brain areas are:
  • Cerebrum (right and left sides or hemispheres)
  • Cerebellum (top and front of the brain)
  • Brainstem (base of the brain)
Effects may be:
  • Difficulty with movement or paralysis 
  • Sensory and physical impairments, or inability to localize or recognize body parts
  • Problems with coordination and balance (ataxia)
  • Chewing, swallowing, speech and language
  • Eating and swallowing, bowel and bladder control  
  • Memory and Cognitive issues (thinking, reasoning, judgment), inability to find objects, or locations
  • Headache, Dizziness, Nausea and vomiting
  • Visual problems, and spatial problems with depth perception or directions
  • Emotional and behavioral changes, such as lack of concern about situations, impulsivity, inappropriateness, depression, or denial ("neglect")   
  • Sexual ability
  • Breathing and heart functions
  • Body temperature control
Read more:
https://www.hopkinsmedicine.org/health/conditions-and-diseases/stroke/effects-of-stroke

What therapies are available for post-stroke treatment?

Therapy will depend on each patient's situation, and the rehabilitation plan will change during the recovery process, depending on which part(s) of the body or abilities were affected and the type and severity of damage.

However let's have a look at certain stroke rehabilitation therapies and the variety of specialists involved:

1. Physical Therapy includes a variety of muscle maneuvers, activities and exercises designed to train the brain and the muscles to work together using an approach that builds muscle strength and maintains healthy muscle tone. Nearly any 30-60 min 5-7 days/week physical therapy is effective to improve your mobility, walk at a faster pace, function more independently, and have a better balance, and is usually already initiated in the hospital, shortly after the stroke. Your physical therapist should be specialized in treating disabilities related to motor and sensory impairments, and be able to help restore physical functioning by evaluating and treating problems with movement, balance, and coordination; and constraint-induced therapy, in which an unaffected limb is immobilized, causing the person to use the affected limb to regain movement and function. Therapeutic recreation specialists help people with a variety of disabilities to develop and use their leisure time to enhance their health, independence, and quality of life.

2. Occupational Therapy is a more task-focused type of training, and therapists work with stroke survivors on practical, real-world, day-to-day tasks such as getting in and out of bed and dressed, eating & drinking, and general walking and climbing of stairs. Occupational therapists also help to improve sensory abilities while ensuring safety in the post-stroke period, such as for personal grooming, preparing meals, and housecleaning.

3. Speech and Swallow Therapy will support you in getting
those skills back, as they require thinking about the action while coordinating muscles of the face, mouth, tongue, and throat. Speech-language pathologists help a person relearn how to use language or develop alternative means of communication, and they also might teach problem-solving and social skills needed to cope with those aftereffects of a stroke. Speech therapy can be focused on understanding words as well as on producing words that others can clearly understand, and usually involves longer practice and repetition. Swallowing problems are usually more of an unpleasant surprise, but can be life threatening, and therapie to improve swallowing starts typically directly in the hospital, eventually by learning the "chin-tuck maneuver" : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4687995/

4. Visual Therapy and balance therapy are often scheduled in combined rehabilitation sessions for stroke survivors, because vision partially relies on good balance and balance partially relies on good vision, and the areas of the brain that control these two functions have to interact.

5. Cognitive Therapy involves interventions that are designed to improve thinking skills and problem-solving abilities, such as using computer-generated and video-game rehabilitation therapy. Stroke survivors who participate in cognitive therapy recover better than stroke survivors who do not. Stroke survivors recovering from a cortical stroke often have more cognitive issues than after recovering from a small vessel subcortical stroke, and left-sided cortical strokes cause different cognitive deficits than right-sided ones.

6. Innovative Physical & New Types of Therapy are including mirror therapy, and electrical therapy, biological therapy, and alternative medicine includes treatments such as massage, yoga, meditation, herbal therapy, acupuncture, music and oxygen therapy. New therapies include Noninvasive brain stimulation, and techniques such as transcranial magnetic stimulation which have been used with some success in a research setting to help improve a variety of motor skills. Biological therapies, such as stem cells, are being investigated, but should only be used as part of a clinical trial. , where results are being evaluated. Research studies show that the use of new and innovative rehabilitative therapies tend to test better on measures of stroke outcomes and usually do not experience negative effects.

7. Psychatrical and Psychological Therapy: Psychologists, and Psychatrists can help with the person’s mental and emotional health and assess cognitive skills, as well as support stress, e.g. with EDMR.

8. Doctors, Physicians & Nurses: Your doctors have the primary responsibility for managing and coordinating the long-term care of you as a stroke survivor, including recommending which rehabilitation programs will best address your individual needs. However, with our experience we like to encourage you to take an active part in this. Doctors supporting often include physiatrists (specialists in physical medicine and rehabilitation), neurologists, internists, geriatricians (specialists in seniors), and family practice physicians. A physician also may recommend medicines to ease pain or treat a condition. Specialized rehabilitation nurses can help a stroke victim relearn the skills needed to carry out the basic activities of daily living. They also provide information about routine health care, such as how to follow a medication schedule, how to care for the skin and manage bladder and bowel issues, how to move out of a bed and into a wheelchair, and special needs for people with diabetes.

9. Job Consultants or Vocational Therapists may support in career counsel, and in helping you in case of residual disabilities to identify vocational strengths and develop résumés that highlight those strengths. They also can help to identify potential employers, assist in specific job searches, and provide referrals to vocational rehabilitation agencies. Usually they work hand in hand with social workers, who can assist with making financial decisions and plan the return home or to a new living place. They also can help plan for care after being discharged from a rehabilitation facility.

https://www.mayoclinic.org/diseases-conditions/stroke/in-depth/stroke-rehabilitation/art-20045172

https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Post-Stroke-Rehabilitation-Fact-Sheet#whatis

https://www.youtube.com/watch?v=2lMtwbj5TTc

Can you recover from stroke?

All patients have a different history, and all strokes are different.
Some people may have relatively minor effects and those may not last long. Others may be left with more serious problems, need short or long term therapy or will even stay with disabilities that make them dependent on other people.
Unfortunately, some strokes can be very serious and some may lead to coma or sudden death. That’s why it’s so important to be able to recognise the symptoms and get medical help as quickly as possible.
The quicker you receive treatment, the better your chances for a good recovery.

Read more:
https://www.stroke.org.uk/what-is-stroke/types-of-stroke
Les Types d'AVC et les effects differentes (FRENCH)
https://www.coeuretavc.ca/avc/questce-quun-avc/les-types-d-avc

How can I prevent a stroke?

Among age, and we all get older, certain medical conditions can increase your risk of stroke. Having them checked and eventually adjusting your lifestyle can help you preventing a stroke:
  • High blood pressure is the single biggest risk factor for stroke. Check your blood pressure regularily
  • Atrial fibrillation can lead to a clot forming in your heart, causing a stroke. If you feel heart arrythmia, speak with your doctor.
  • High cholesterol and Diabetes are further risk factors.
Lifestyle factors as smoking, alcohol, being overweight and eating unhealthy foods can damage your blood vessels, increase your blood pressure and make your blood more likely to clot.
Check also your family history, if a close relative (parent, grandparent, brother or sister) has had a stroke. Speak to your General Practitioner if you have close relatives with stroke or heart attack, as some kinds of high cholesterol can run in families.
100

Donation Amount

  • Monte-Carlo, Monaco-Ville, Monaco
  • Le Victoria 13, Boulevard Princesse Charlotte 98000 Monaco

Considering becoming a Member? Active Member Fee is 100€. Active members must renew at 100€ each year, and may choose to join and renew with an additional donation to MonacoAVC. Steven has been giving 2’607€ and 2’019€ = 4’626€ as a donation in memory of the stroke (AVC) of Steven on July 26, 2019.

Physical Therapie

Physical Therapy includes a variety of muscle maneuvers, activities and exercises designed to train the brain and the muscles to work together.

Learn More

Occupational Therapy

Occupational Therapy is a more task-focused type of training, and therapists work with stroke survivors on practical, real-world, day-to-day tasks such as getting in and out of bed and dressed, eating & drinking, and general walking and climbing of stairs. It usually starts directly in the hospital on Day 2 or 3.

Learn More

Speech and Swallow Therapy

Speech and Swallow Therapy will support you in getting those skills back as swallowing is equally important for breathing, coughing, speaking as it is for drinking and eating.

Learn More

Visual and Balance Therapy

Visual Therapy and Balance Therapy are often scheduled in combined rehabilitation sessions for stroke survivors, because vision partially relies on good balance and balance partially relies on good vision, and the areas of the brain that control these two functions have to interact.

Learn More

Cognitive Therapy

Cognitive Therapy involves interventions that are designed to improve thinking skills and problem-solving abilities.

Learn More

Yoga & Meditation

Further Therapy Forms in Post-Stroke Rehabilitation

New types of therapy are evolving, like Innovative Physical Therapy, EMDR, Mirror Therapy, Electrical Therapy, Therapy Dogs and Music Therapy.

Fragile Suisse

FRAGILE Suisse is the Swiss patient organisation for people with strokes and their relatives, and supported us personally. They are offering a wide range of services with eleven regional associations in Switzerland: https://www.fragile.ch

Learn More
  • Monte-Carlo, Monaco-Ville, Monaco
  • Le Victoria 13, Boulevard Princesse Charlotte 98000 Monaco

Membership in the MonacoAVC association is open to any Monaco citizen, resident or regular in Monaco who is committed to supporting the MonacoAVC association and its vital work. Together, we can educate, inspire, and mobilize the nation to take action for a better world. Stand up for the UN and sup